Ana was admitted to MUSC this past Sunday. A nurse dropped my to meet us and ask questions about the pump. She mentioned a mom who came in with a complete list of "must haves" which included the Infinity. I giggled and said "I bet that was for Crosby!" ... She looked at me and smiled. I am so glad you went in prepared! She was talking to me about how they might be able to start a program where parents are given a package of info before tubes are placed. Then they can review the info and let her know what company and products they would like to use at least 1 week before the surgery so things are ready when they get home! I am going to try to assist when we get back from the big trip! Think of things that would have been helpful before surgery and let me know what those are!
Did you get your Infinity yet?
Emmy

Emmy,
Hi!! So sorry I am just now getting this message. We have had an eventful summer!
You must have talked to the care manager Robin. She was so great and has a lot of really good ideas. I hope she is able to get that system in place. I would LOVE to help out if I can. I will do some thinking nad send a longer post when I can think of what shoul dbe included in the questionaire.
Thanks!